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Kelly G. Ripken's Best Thyroid Web Sites
These Web sites contain valuable information about thyroid diseases
for patients and their families. While a number have similar information,
each has unique features that you may find helpful.
Please remember that this information is for educational purposes,
not a substitute for good medical care. Do not rely on it for diagnosis,
treatment, or other medical purposes. For patients with known or
possible thyroid problems, nothing can replace a personal assessment
of your health history, physical examination, and tests by a physician
knowledgeable about the thyroid gland and its diseases.
Patient Education and Support Organizations
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The Thyroid Foundation of America is a nonprofit organization
created in 1985 to provide health education and support for
thyroid patients and health professionals and increase public
awareness about thyroid problems. It prepares educational
brochures and a quarterly newsletter for thyroid patients
and health professionals with up-to-date reviews of important
thyroid topics, reports on TFA Chapter activities, and notices
about books and meetings of interest to thyroid patients and
health professionals. Its Web site includes a glossary of
thyroid related terms and information on a wide variety of
topics under "ThyroNotes." http://www.allthyroid.org
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The National Graves' Disease Foundation, established
in 1990, is the only national, lay, nonprofit, educational
organization open exclusively to people with Graves' disease.
The Foundation provides education and support for the patients,
their families, friends and health care professionals. For
the past 8 years, the Foundation has held an annual patient/family
conference. Its Web site includes a list of support groups
around the country, frequently asked questions about Graves'
disease, membership applications, and more. http://www.ngdf.org
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The Thyroid Foundation of Canada/La Fondation Canadienne
de la Thyroid maintains a Web site that provides up-to-date
information for thyroid patients and their families. It also
maintains links to other health and thyroid related organizations
and Internet resources. Several parts of the site make it
worth visiting. They include health guides, an international
directory of Thyroid-related organizations, and some articles
reprinted from the foundations quarterly bulletin, Thyrobulletin.
The French version of the site makes it an important resource
for French-speaking patients and families. http://home.ican.net/~thyroid/Canada.html
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ThyroLink, maintained by the European pharmaceutical
company Merck KgaA, is a Web site that pulls together material
about the thyroid diseases from all over the World Wide Web.
Thyrolink can facilitate searching because it has linked areas
such as patient information from a variety of Web sites onto
its Web page. It also connects to thyroid/endocrine journals,
Medline and several online bookstores. http://www.thyrolink.com
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EndocrineWeb (Endocrine Disorders and Endocrine Surgery)
is a commercial site developed by YourDoctor, Inc. The information
is intended for the education of patients and their families;
the company states that the site is updated twice a week though
only on the site map is there any indication that new material
has been added. There is a large amount of information and
many illustrations on endocrine disease, conditions, hormone
problems, and treatment options including all types of thyroid,
parathyroid, and adrenal surgery. Though it has a section
to "find a doctor," there are very few doctors listed.
The Web site of the American Association of Clinical Endocrinologists
is the place to find physicians in your city and/or states
or countries. http://www.endocrineweb.com
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Patient Education
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Mayo Clinic Health Oasis is an Internet source of reliable
health information from the Mayo Clinic. An editorial board
of the Mayo staff selects health topics and enlists specialists
to be expert sources for each article. The articles are dated,
and the Web site is updated weekly. This is a good source
for up-to-date, reliable information about the thyroid gland
and its various diseases. Search a topic, such as "thyroid"
or "Graves disease," and find a list of articles
that are current and relevant. The articles have good illustrations,
many of which are in color. http://www.mayohealth.org
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Professional, Medical, and Scientific Organizations
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The American Association of Clinical Endocrinologists
(AACE), an organization representing 2,600 practicing clinical
endocrinologists, maintains a Web site that is full of helpful
information. Patients can find a practicing clinical endocrinologist
around the world just by typing in a city, state, country
and specialty. There is also a self-test for people concerned
about potential thyroid problems. Patients can read the complete
clinical guidelines that AACE has developed for physicians
to use in diagnosing, treating, and following patients with
hyperthyroidism and hypothyroidism. In addition, there are
informative press releases and other information. http://www.aace.com
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The American Thyroid Association is a professional
society of physicians and scientists who treat and perform
research related to thyroid diseases. For a complete directory
of patient support organizations, this is the place to look,
under the site's Patient Information section. Informative
brochures and books are also listed there. The American Thyroid
Association presents its authoritative clinical guidelines,
which have been developed for use by primary care physicians
in the evaluation and management of patients with hyperthyroidism,
hypothyroidism, and thyroid nodules. http://www.thyroid.org
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The Endocrine Society, with more than 9,000 members
from 78 countries, is the world's largest and most active
organization devoted to the research, study and clinical practice
of endocrinology. Together, these scientists, educators, clinicians,
practicing MDs, nurses and students who make up the organization's
membership represent all basic, applied and clinical interests
in endocrinology. The Society's web site allows patients to
read about the work of endocrinologists and search the table
of contents and abstracts of articles in their journals. Its
list of other endocrine web sites for professional and patients
is particularly useful. http://www.endo-society.org
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